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an everyday life

Tag Archives: Hospice

Another Chapter

22 Thursday Apr 2010

Posted by Janell in Life at Home

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Tags

Aging, Death, Everyday Life, Friends, Hospice, Parents

Oh Daddy.  It’s been a terribly long day.

I hope you’re resting easier now.  I hope the fever is gone — that all the bedding changes, necessary but tiring, are over.  How many sponge baths did you endure today?

It’s been a day for wondering.  Biggest of all, I wondered where you are  — is this just another chapter in your ongoing struggle to stay alive?  Or have we turned the page to the final chapter and don’t yet know it?  I wish I could skip ahead, just like I do with a really good book when I’m too tired to stay up any longer to read, to see how you and this particular story are going to end.

The nursing home called Sis at 1:00 AM.  Listening to the litany of indecipherable clues, Christi finally had to ask, “Are you telling me to come?”    Surprisingly, there was no pause.  “If he were my father, I would.”   It really does help to cut through the vagueness with sharp, penetrating questions.  I need to remember to do this more often.

Christi threw on a jacket, brushed her teeth and picked up her eyeglasses and her purse before she hurried into the dark to sit by your side.  She could have woke up Jane to go with her.  But she decided to drive herself instead.

The drive was thirty minutes.  Quick.  No traffic.  She had a full tank of gas.  And by this time, Christi is a well-oiled machine.  Christi can respond to your distress calls with no need for help.  Wouldn’t you say, Daddy, that Christi has grown up a lot over the last eleven months?

Of course, just because we can doesn’t mean we should.  We aren’t made to go it alone, are we?  I know Daddy, how relieved you must have been to see Christi’s face when she walked in the door at 1:45.   Can you blame her if Christi wasn’t similarly relieved?

It didn’t take Christi but a few minutes to call me.  An hour and a half later I walked in with Jon.  It was 3:15.   Christi waited until a more decent  6:00 AM to call Jane.  And an hour later, Jane walked in with Aunt Jo.  Where else would mother’s sisters be, but by the remnants of mother’s family?

It was a long terrible day.  But Daddy, even though you were mostly oblivious to it all, there were moments of terrible beauty throughout it.

The hospice team we engaged are wonderful.  I can tell they are old pros at this business of compassionate dying.  I sense that they will steer us through whatever is to come.  The will let us know, the best that they can, where we are in your book of life.

Then there were all the kindnesses we received throughout the day.  Breakfast brought in by Jane.  Coffee and snacks made by Dottie, the manager of the nursing home kitchen.  All your nurses.  Everyone trying to make a painful process less trying.  It was only later that I thought that this is how it should always be, that we should always go out of our loving way for others.

Then there was your ever faithful sidekick Larry.  Larry didn’t at all appreciate being closed out by a wall of curtains.  I just smiled as he asked the nurse to  push back the curtains.  Larry wanted to keep his practiced eye on you.  I felt sorry for the nurse — in these days of HIPAA, what’s a compassionate nurse to do?  I offered her a helping hand — I  told her to please push back the curtains — that Larry was your family too.

What else is there to say at this point of the story?  But that I love you Daddy.  I hope you get a good night’s rest.  I hope the same for all who love you and us.  Because tomorrow promises to be another long day.  But don’t worry.  We’ll get through this.  We can hold hands through the scary parts.

Are We There Yet?

08 Saturday Aug 2009

Posted by Janell in Life at Home, Prayer

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Tags

Aging, Are we there yet?, Death, Everyday Life, Hospice, Nursing Homes, Parents, Prayer, Road Trip

We call something science when the reactive outcome is predictable between types of matter; like when two parts hydrogen and one part oxygen react to form water; and when water, yeast and flour react to form bread dough;d'oh and when…“D’oh!”…a child reacts to a long road trip to form that predictable whiny line:  “Are we there yet?”

This children’s query popped out of my own mouth unexpectedly this week while speaking with the director of nursing at ‘Dad’s’ rehab center.  But in the crazy way that life works out, this question from my past frames so precisely the most nagging question of my present; for in fact, these last two weeks of my father’s life feel a lot like one of  those long and whiny road trip’s of my childhood.

Same as then, Dad is in the driver’s seat, a little blind to all the nuances of the medical calamities he’s running over, to all the danger signs he’s ignoring, to all the exit ramps he’s missing; just like then, Daddy is lost, and I think he’d like one of us kids to take over at the wheel.  My sister and I have the power if not the desire; it’s our hope that Daddy will make his own health decisions as long as he’s able and willing.  But then and now, Daddy shies away from decision making; and so different from then, Dad no longer has Mom to play navigator. 

DSC01674aWhat seems clear to all is that Dad has suffered a major setback.  He’s passed through dehydration, where we found the state of pneumonia and then through dysphagia toward the current state of feeding tubes.  Dad has taken in sights that he hoped to never see.  Daddy is worn out; he sleeps most of the time and when he’s awake he seems far away.  But whether or not he sleeps, Daddy’s sad.  And this makes me sad too.     

So I’m lost.  I confess to not knowing Dad’s current medical state.  Nor do I know in which direction Dad’s heading; is Daddy becoming better, becoming worse, or lost somewhere in between?  I’ve no map, no landmarks, no navigator, not even a hunch.  And while my sister and I talk all around it, the only thing we can scavenge up for sure is that there is something very different about Daddy. 

Looking for that elusive reality check is what took me to the director of nursing.  And not one to beat around the bush, I came right out with my questions:  “Was it time for us to call in hospice?”  “Are we there yet?”

I know these questions are difficult to answer, even for someone who practices in the medical field.  Medical science is not as predictable as the other branches of science since the human element makes all reactions unique.  And even if it were, the nurse doesn’t know Daddy and we who do have no medical background.  So overall, it’s the blind leading the blind. 

For who but God can put together the pieces, to know where Daddy is right now and in which direction Dad is heading.  But it’s the nurse’s sense that we are not yet ready for hospice because we are not there yet.  And so we wait.  We wait to see where Daddy will take us next.  As we wait for the gift of hindsight to inform us later of where we are now.  And for now… I simply pray for travel mercies. 

“Do any human beings ever realize life while they live it? — every, every minute?”

-- Thornton Wilder, "Our Town"

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